Engagement of People with Lived Experience of Dementia

Leads: Jennifer Bethell and Katherine McGilton

The Engagement of People with Lived Experience of Dementia (EPLED) is a new program introduced for CCNA phase II. Through this program, we will work to enable those with lived experience of dementia – persons with dementia and their care partners (i.e., friends, family and caregivers) – to be meaningfully and actively involved in the CCNA research process, including governance, priority setting, conducting research and knowledge translation.

Objectives

  • Support persons with dementia and care partners to be actively involved in the CCNA research process;
  • Work with CCNA research Teams, Cross-cutting Programs and Partners to develop novel mechanisms and formats to further this collaboration; and
  • Advance the methods of patient engagement in research, including specifically for persons with dementia and care partners, by embedding evaluation processes that will measure the impact of these CCNA initiatives.

Learn about our integration of lived experience perspectives in research meetings!

For more information on this program, visit the EPLED Website

EPLED in Research Reference List

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