Subjective Experiences of driving Cessation and Dementia: A Meta-Synthesis of Qualitative Literature

Objectives: To review qualitative research on the specific challenges and strategies that relate to driving cessation for older adults with dementia, from the perspectives of key informant groups.

Method: A meta-synthesis of qualitative studies was conducted. Structured inclusion criteria were applied to screen 616 titles and abstracts, and 9 qualitative studies were included, published from 2002 to 2016. Descriptive themes were identified using content analysis and synthesized to generate analytic themes.

Results: The study samples and methodologies represented a diverse range. Cross-cutting themes on experiences of driving cessation for people with dementia are the: importance of open communication and autonomy in decision-making, and advanced planning to connect people with resources; significance of relationships; importance of providing support for the impact of cessation on identity and emotional wellbeing; and benefit of individualizing supportive approaches.

Conclusion: This review identifies some important areas for consideration when designing supportive programs to address driving.

Clinical Implications: Interventions to support driving cessation for people with dementia should prioritize support for communication, advanced planning, and emotional effects of stopping driving.