Developing the Driving Cessation in Dementia Toolkit (DCDT): A Knowledge-to-Action Process

Background

Despite the well-known challenges that driving cessation poses for people with dementia (PWD) and their family caregivers (FC), there are few evidence-based interventions and resources to support them. To address this gap we used a Knowledge-to-Action approach to develop a Driving Cessation Intervention Framework (DCIF) and Driving Cessation in Dementia Toolkit (DCDT).

Methods

In the Knowledge Creation phase of the KTA we conducted a series of knowledge synthesis activities including systematic reviews and a meta-synthesis. Knowledge inquiry activities involved qualitative studies with PWD, FCs and healthcare/service providers (HCSP). The second part of this phase, comprised a process of collecting and reviewing available tools and resources, curated according to the DCIF. In the Action Cycle phase we adapted early versions of the DCDT according to feedback from Alzheimer Society staff and an Advisory Committee of PWD and FCs.

Results

Knowledge Creation activities resulted in the production of the DCIF and the DCDT. The DCIF identified key elements of the decision-making and transition process to non-driving (e.g. awareness, communication, grief and loss), which along with Action Cycle activities informed our development and refinement of the DCDT—a web-based collection of curated tools and resources with guided access to specific content and unique portals for each target audience (i.e. PWD, FCs, HCSPs).

Discussion

In using a KTA framework we employed a systematic approach to the creation, application and promotion of driving cessation knowledge. The involvement of knowledge users in an integrated and iterative manner throughout the development process was essential to ensuring the relevance and uptake of the DCDT.

Conclusion

The KTA framework played an integral role in developing a toolkit with the potential to enhance the safety and quality of life for PWD and FCs.